Category Archives: Progress Reports

The Past, Present and Future

Life has been quite full on for us lately. Our son who is on the BioMed journey had dental surgery  in early September which he came out of extremely upset.  The cannula was still in his hand when he woke and he hated that.  He was saying “Help me Help me”, wanted to hide under the blanket, was cold – it was very distressing for everyone.  I’m so glad my husband had taken the day off work to come with us.  He calmed once we got in the car and started moving.

The following weekend I had a miscarriage at 11 weeks during which I lost a lot of blood and ended up in shock so I was in hospital for a night. The weekend after that my husband had a job interview interstate , which unfortunately he didn’t get.  On top of that he’s been working on a new project which has taken up basically all his free time which inturn, means no free time for me as I am full time child carer.  Anyway, our son recovered from his surgery well and I am still building back up but we are getting there.

We have been continuing on with the S-adenosyl b12 shots for a few months now. Our son now marks the spot with a whiteboard marker for the Emla cream to go on and then once it has done its magic (and sometimes even before) we do the shot.  He insists on standing for them now for some reason. Although he is familiar with needles now, we still can’t get a blood test done.  He was terrified last week when we tried to get a test done so we gave up to maybe try another day.

I’m not sure if its making a huge difference as yet.  I must go back and compare some videos and my notes from before we started them. I know that he definitely doesn’t seem to go down/backwards in the days before he is due for it.

It had become apparent lately that when he couldn’t answer a question, he would go to a default of saying what he was thinking about or a line he knew by rote from a game or movie. It was as if he had too much information to process or couldn’t gather his thoughts and put it all together to process it and develop an appropriate response. I asked him the other week where the words were getting mixed up and he said “In my head”. I had a feeling this was the case as opposed to them getting jumbled on the way to his mouth. Many times our son would hit his head out of frustration in not being able to get his point across or make his thoughts understood. In discussion with our Biomed Dr we have decided to introduce Bethanecol.

It is believed (my take on it anyway) that information comes into the brain from the differing inputs and senses and then travels across the brain a few times to process and come together.  When these streams of information are travelling at different speeds, they cannot come together and therefore it all becomes a big jumble of information.  Bethanecol enables these streams of information to travel at the same speed.

The results from using this drug can be astounding. Non verbal children have been speaking in sentences within an hour of the first dose.  This is one of the reasons (besides a possible adverse reaction of which to my knowledge there has been none) that the Doctors like to do the first dose in their rooms – its so rewarding to see such an immediate change in a child. I should have it by the end of the week and we are booked in for his first dose next Wednesday.   I can’t wait.

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5 Orange Tic Tacs

That is all it has taken to teach our son to swallow capsules.

Previously I’d been opening up his capsules and mixing them with juice or fruit puree.  Lately our son had started gagging at the sight of these mixes and to be honest, they did taste terrible.  I’m very proud that he has taken his supplements in this way for so long.

A couple of times I’d tried to teach him to swallow capsules by using the empty shells of the capsules we had.  This never worked though as they collapsed in his mouth and he ended up chewing them.  Also now that I put some more thought into it, an empty capsule wouldn’t have been easy to wash down with water as it would float.

This morning I did a little googling and came across the Tic Tac method.  Basically you find something small that if they do chew it or it melts in their mouth that it won’t taste terrible – or waste or improperly dose supplements.  Although containing maltodextrin which can be wheat or corn derived, it is processed down so far that no proteins are left to cause a reaction.  I decided to use Tic Tacs in spite of the risk of corn or wheat for the longer term goal of ensuring that he will continue to take his supplements.

I’d spoken to our son about how if he could swallow capsules then he wouldn’t taste the supplements. So tonight we had a glass of water and a straw (apparently they concentrate on the straw and not the capsule) and our tic tacs.  He had a suck of water, I popped the tic tac in his mouth and after a bit of movement around the mouth, it went down! And then the next 4 – one even without a drink! Next he said he wanted to take his capsules and he took the smaller 2 straight down. I’m so proud of our boy.  He is only 5 1/2 and he has mastered the art of capsule swallowing which is hard for many adults.

Now we will wait a while and really get this down pat then work up to the larger capsules. I’m sure this little step will make this whole journey much easier.

ETA – Ok, today wasnt’ as successful but we will keep trying

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Yay for the little things

After 4 months on the Biomed journey, one of the recent changes has been changes in tastes.

At first our son refused to replace dairy with rice milk, but when on holidays he had some rice milk made into a hot chocolate.  I started to make my own drinking chocolate mix which is equal parts pure cocoa powder and icing sugar. Then one day about 2 weeks ago he asked for a bowl of rice bubbles (I get pure rice puff from a wholefoods store) with rice milk.  Since then they are the default answer for “I’m hungry”.  He is also drinking rice milk by the glassful.  By using the rice milk with 300mg of calcium per 250mL, this means that if I track how much rice milk he has during the day, I don’t need to supplement as much calcium for him in his evening meds.

Spring onion dip used to be a favourite around these parts until going dairy free.  Our son loves dips so I tried to introduce hommus but he wasnt’ a fan.  Salsa was ok but not a huge hit.  Yesterday for some reason I bought a tub of hommus dip – and he ate almost the whole 200gm tub!  Today I thought I’d push my luck with eggplant dip and he is currently ploughing through that. I think I need to buy more rice crackers (we find Sakata plain ones good but some kids do react to them)

When I was looking for the eggplant dip today, I found a range of suitable dips by Yumi Seafoods. I can see us working our way through their range. Even their creamy ones are gluten and dairy free mayonnaise based. I must check what type of oil they are using in their mayo first to make sure its not soy or corn oil. I am presuming that its canola  as that is what is used in their mayonnaise but that is one thing I’ve learnt – presume nothing.

Another improvement that has come along without us specifically addressing them is nail biting.  our son was getting bad at nail biting, often biting his nails until they bled.  I tried the yucky nail polish but that didn’t work.  About 3 weeks after starting biomed I noticed his nails had grown long and I actually needed to  cut them! I hadn’t cut his nails for about 2 years but now I need to cut them every week or so.

Hair washing used to be a real trauma.  The thought of getting bubbles in his eyes prevented me from shampooing his hair for a couple of years.  We relied on plain water washing his hair in the shower.  I must admit that plain water did do an alright job but sometimes it did need something a bit more to remove the build up of  skin and oil on his scalp.  It wasn’t long after starting biomed that I was suddenly able to wash his hair.  We get him to hold a flannel over his eyes just in case but at least now its easy.

One thing that I’m sure will have improved is his reaction to swimming. He loves the idea of it but I think its a combination of putting his head in the water and the sensation of semi weightlessness that holds him back.  I can’t wait for warmer weather to get back to the pool.

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Pre Appointment Review – May 2011 – 11 Weeks with BioMedicine

Our third Biomed appointment is tomorrow so I thought I’d do a  post before each one on where our son is at.  It will be a good way not only to consolidate my thoughts before the appointment but also review progress made between appointments.

Before our first appointment our son had issues with focus, constipation, fussy eating (taste and texture), speech, eyecontact, excema, low muscle tone and odd limb positioning, looking out the sides of his eyes, short term memory, responsiveness and bed wetting to name things off the top of my head. There were probably other things too that I can’t remember now. Our first appointment was on the 8th of March 2011.

Up until the second appointment we only went dairy free and supplemented with Cod Liver Oil, zinc and Sacro B probiotic and Epsom salt baths.  Most supplements are practitioner prescription ones as they are pure and not combined with other things.

Between the first and second appointments he made great advancements.  He became regular in his bowel movements and his diet has improved in both volume and variety. He became more responsive and chatty, seemed to move more fluidly and is more switched on. The only negative that we have had is his eczema has broken out.

ETA that one of the little things that I never expected was that he also stopped biting his fingernails.  He had been biting them right down to the skin but now I am having to cut them.

After the second appointment on the 19th of April 2011, we swapped the Epsom salt baths for a magnesium supplement as our Dr thought that it may be the sulfur in the Epsom Salts that was bringing out the excema – of course just after I’d bought a 25kg bag of salts. Due to our son deciding not to substitute rice milk into his diet and limited diet, we also decided to add a calcium supplement.  Until we had some blood tests to test for his levels, our Dr decided to leave everything else alone.

We went gluten free as soon as he’d had the Celiac blood test  which was on the 28th April, 2011.  In going gluten free I’ve decided to avoid but not eliminate soy.  Corn is also difficult to avoid as its one of the main gluten free replacements.

The change in our son between these appointments has not been as dramatic as between the first two appointments but there have certainly been advances.  He will now spontaneously tell us things that happen at Kinder such as “Hamish was the Hairy Hat man today” ( H is the letter of the week). His memory seems to be getting better although it may just be his ability to express it.  This week he came out with a whole stream of sentences which covered the letters A-H and how they had learnt them at kinder over the past 10 weeks.  “A is Annie Apple, B is…” Also although still not great, his pencil grip is getting slightly better.  Unfortunately the eczema has not resolved by removing the baths.  I’m wondering if it could be the sulfur in the zinc sulfate.

A down side to bringing him out of his ‘fog’ is that he is often more interested in everything going on around him than the task at hand.  When a friend saw him after going dairy free, she said he looked as if he was seeing the world for the first time. He is also having difficulty sitting still and straight but I’m unsure if this is a biomedical or a chiropractic adjustment issue as its been almost 4 weeks since his last adjustment,

Our third appointment is tomorrow.   We will have been supplementing and dairy free for 11 weeks and gluten free for 4 weeks.  Areas I that I feel need attention are his attention span and task focus, speech (receptive and expressive), fine motor strength – after all he is great at using Lego but the pencil grip is hard for him, his tendency to loll and lay about and the excema flare up. Bed wetting is still and issue too. I don’t know if its related but he is also much harder to get into bed at night as he seems to be finding it hard to switch off.

I just asked him what he wanted the doctor to help him with tomorrow and he replied “To get the foggies out.  There is one foggy left” .  Its so wonderful that not only are we seeing the changes but he is feeling them too.

*Although I mention our supplementation and diet here, we are doing this under medical supervision, which I would encourage you to do also if you wish to follow this type of regime*

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