Monthly Archives: June 2011

Noooooooo!

Cupcake by Jillian Nicole via Flickr

They look innocent don’t they?

Yesterday our son was accidentally given one of the birthday treats brought in to his Kinder.  He has substitute treats in the pantry at Kinder for him to have on days like today, but he was accidentally served up a cupcake.

I suppose it had to happen one day but it is still disappointing.  We put in all this hard work only to have the rug pulled from underneath us by someone else’s mistake.  Our son is usually very good and will ask if something is safe for him, but today he didn’t and ate it all by the time they realised their mistake.

He hasn’t reacted too badly fortunately. He is puffy around his eyes, sing song-y in his self entertainment when bored at the doctors and less responsive when we speak to him.  He was still able to take me through the whole “Goldilocks and the Three Bears” story that he laid out around our house. It was lovely to see things that he is doing at Kinder sinking in and him being able to process it and retell it in his own way complete with 3 different sized bowls on the table and 3 different sized chairs.

We had a doctors appointment today which as always was very enlightening.  Hopefully I’ll be back with a pre appointment and post appointment updates before we go on holidays on Friday.

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Filed under Bio Med, Gluten Free (GF)

The Role of Traditional Diets in Healing.

Have you ever found yourself thinking about something and wondered how you got there? Well that is what its like on the internet for me nowdays.  i find myself on a page, not knowing how I arrived there as I have leapfrogged from one site to another.  Its sort of like taking a walk in the bush – around this tree, over that log, around that rock… then suddenly you come across something wonderful.
This is one of those wonderful things.  It is an article I found on Nourishing Hope.  It is a great introduction to the biomedical approach which can be applied to many chronic conditions.

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Filed under Bio Med, Corn Free (CF), Dairy Free (DF), Gluten Free (GF), Grain Free, Nuts, Soy Free (SF)

I’ve been bad…

… I haven’t listed out dinners for almost 2 weeks.

I know this as I have each nights dinner scrawled on my fridge blackboard. Its actually been quite enlightening as it shows how much variation there can be.

So here we go:

  • Pork chops with vegetables
  • Lamb Steak with salad and homemade chips
  • Apricot chicken with rice and beans
  • Lamb Rissoles with vegetables
  • Roast chicken with roasted potato, pumpkin, beetroot and steamed beans
  • Tempura Fish and homemade chips
  • Pork stirfry with fried rice
  • Pork sausages with fried potato and peas (this was a Dad creation as I was attending a lecture)
  • Chicken Korma curry with rice and peas
  • Pork Sausages – a slack night where this was all we felt like – no veges.
  • Lamb casserole made with chops, potato, pumpkin and carrot and served with a side of Kale and red cabbage sautéed with bacon and garlic until wilted.
  • Lamb spaghetti Bolognese with rice pasta for our son and rice and corn pasta for the rest of us.
  • Pumpkin soup made with stock made from the carcase of the roast chickenwith GFDFCFSF bread rolls
  • Devilled Sausages with mashed potato and peas

Wow, it really has been a while!

I’m still not having success with baking though. Those ‘yummy’ fig and honey muffins didn’t turn out very well.  My raspberry and apple variation sounded yummy but tasted tart and its pinky brown colour made them look like half cooked rissoles. Next I made it to the recipe but I didn’t like the gritty texture of the figs.  My mum said she often made it with sultanas as she didn’t like the texture of the figs either. Dates or apricots might work well too.

I have soaked some nuts this week so our son can have his much adored cashews without it upsetting him. I’m so glad I asked my mum if I could have her dehydrator.  I put the nuts in to soak in the morning, drain whilst I’m preparing dinner, put on to dry out over night in the dehydrator and in the morning they are done.  From these I will make my own nut flours as I think I should soak the nuts first before grinding into flour so as not to upset our sons stomach as he obviously can’t digest unsoaked nuts.  I will do a post about the benefits of soaking nuts soon.

Coconut flour is also on my radar. I can buy organic dessicated coconut and I want to try making coconut milk with it and using the left over pulp to grind into flour.  I will buy a bag of commercial coconut flour, which apparently is defatted, to compare it with.  Hopefully they are similar and I can use this possible waste product in my baking. Its very low GI and high in fibre, so a very healthy baking ingredient.

Fortunately I have a week with my mum soon so we can experiment. She has already been trying out recipes for me and my dad says the carrot cake she made was quite good.  I can’t wait.  Lets just hope the Chilean volcanic ash cloud doesn’t disrupt our travel plans.

 

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Filed under Baking, Corn Free (CF), Dairy Free (DF), Gluten Free (GF), Grain Free, Meal Plans, Soy Free (SF)

Always learning

Bah – I new I wouldnt’ be good at blogging!  I have to apologise for the lack of photos. I know they make a blog much more interesting to read.  Plain text is not very interesting to read, but I appreciate you sticking with me whilst I organise myself.

Life has been a bit hectic around here between sickness and getting ready for a trip away to my brothers wedding in less than 2 weeks.

On the weekend I attended a lecture given by two very well respected doctors on the field of bio medicine.  I’m still trying to absorb the information presented and when I do I will do summary on here.  One thing that was mentioned and I’ve been doing some googling on since the lecture was removing all grains from the diet – not just gluten containing grains and corn but ALL grains. This along with the mantra’s of “Heal the gut, heal the child” and Hippocarates, “All disease begins in the gut”, really drove home to me the importance of my job of feeding my family.

At first I thought, ‘how can you do that and still have a diet resembling something normal?’. With a little googling and a phone call to my mum, I have what sounds like a yummy fig and honey muffins and a grain free baking book in my cart. I’ll be trialling this recipe today with a bit of a twist. Cross your fingers for a success. I’d recently also heard of crumbing fish in almond meal which was apparently very yummy, so I’ll try some nut crusted nuggets today too.

I haven’t discussed going grain free with our doctor as yet, even though she was also at the lecture. It does seem to take some confusion out of the gluten free baking maze though as removes some of the gluten free options.  I found myself getting paralyzed by all the options and baking mix recipes I’d found.  To go grain free and remove sorghum and rice from the options, actually makes it easier in my opinion. It basically leaves nut flours,bean flours, quinoa flour, potato and tapioca starches.  I still have some sorghum and rice flour here so I will use that up whilst I get myself organised for grain free and going away. We visit our doctor again a few days after we are back from our holiday so I will discuss  a completely grain free diet with her before going hard core. The only issue I see with using so many nuts though is that our son has a bowel reaction to nuts so they need to be soaked and dehydrated first to kill the enzymes causing this reaction, then ground into a flour or meal. Just another layer of complexity to deal with but it will be worth it – I know it will.

 

 

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Filed under Baking, Bio Med, Grain Free, Nuts

Post appointment Summary – May 2011

Sorry, I should have done this a week ago.

Our Dr had the results of the barrage of blood tests we had done.  Some of the results they returned included confirming the thoughts of low vitamin A and zinc, high copper and a double blockage at the MeTHFR position on his methylation cycle (once I get my head around it, I will do a post about this to explain to both of us) .  Celiac disease was also  ruled out.  Our doctor was surprised that he had vitamin D levels within the normal range.  I’m sure there were more but I can’t think of them right now.

Once we had reviewed these blood tests we moved onto the areas that I felt needed help.  Fortunately, I’d thought about this in advance and made a list to take with me.  The areas that I had written downs were;

  • bedwetting,
  • not going to bed until late ( just wanting to go go go and not wind down),
  • eczema flare up badly around the backs of knees, elbows and neck,
  • task focussing (Kinder mentioned that its difficult to get him to stay focussed on a task such as cutting out)
  • pencil grip (although he can manipulate lego with quite a lot of ease),
  • lolling, leaning and laying about ( he is always leaning on things and prefers to lay on the floor than sit. As a baby when asleep we called him our ‘floppy baby’.  Now I think about it maybe this is also tied into his not sitting, crawling an walking until much later than most babies at -I think- 9,11 and 13 months respectively)
  • speech (much improved already but a long way to go)
I do love how our Dr conducts our appointments by writing down notes as we speak and then copies them so we each have a copy.  This makes it so much easier to review the notes later.  So how are we addressing each of these issues?
One of the first things is to remove soy and corn from his diet in addition to gluten and dairy. As he also seems to have an issue with the digestion of nuts (a few seems to be ok but lots will cause diarrhoea).  This may all be linked to sensitivity to oxylates, which is something to investigate later on.
So going in the same order as above;
  • bedwetting – magnesium brought up to 400mg per day
  • not going to bed until late – increase Cod Liver Oil to 6mL per day
  • eczema flare up – change zinc sulfate supplement to  picolinate  as a compounded 1/2 strength primer which also contains vitamin B6 and P5P
  • task focussing – add the amino acid Tyrosine 500mg per day
That leave the last 3 areas
  • pencil grip
  • lolling, leaning and laying about
  • speech
As our son has a double blockage at MeTHFR, the usual protocol is to supplement with methyl B12 injections. This will help his speech and pencil grip as (I believe) it helps regenerate the nerves. There has been research though that in some patients, methyl folate has a better result. The absence or presence of chemical markers in a urine test will show the best supplement to use.  This organic acid profile will also show any markers which may also point to problems with mitochondrial function. Its the mitochondrial function which is behind fine motor skills and energy levels.  The mitochondrial are the power stations of the body within each cell. Additionally it will show markers indicating gut bacteria which has an impact on cognition.  Expensive little test at $Au400 but very much worth it.
Once his vitamin A levels improve, there is also Bethanacol which also acts on the speech pathways with some kids going from low language to speaking in sentences in an hour.  It just goes to show that its not lack of ability or intelligence in many kids but just lack of the complete bio chemical pathways.
So right now we have implemented the changes as noted above and are waiting on these results and hoping they are back before our next appointment.  As our son hasn’t replaced milk with another calcium drink, we have also supplemented in calcium at 600mg per day.
I really want to move onto the methyl b12/folate supplementation as from what I read, this is the thing that really makes a huge difference.
We have already seen changes in the last week and a half.  His eczema is clearing, his speech is better.  He is able to express his thoughts.  He is coming out with multiple sentences up to 10 words long.  He has come such a long way in such a short time.  4 months ago, we were lucky to get a disjointed 6 word sentence in reply to a leading question.  That was the best language he could express.  Now you can hear his thoughts coming out.  The night before last I was sitting in bed with him and using our new netbook.  He looked at me and said “We have 4 computers”, in a tone that really expressed that he had been thinking about it. He is expressing observation, feelings, putting concepts together. I wonder if his speech therapist will notice any difference at our next appointment on Friday. Its just so encouraging so see how far he has come already and how much potential is just under the surface but needing the right help to get it out.
So in summary, our current protocol is;
  • gluten,dairy, soy,corn free
  • CLO 6mL/day
  • Ca 600mg/day
  • Probiotic (SacroB) 1/day
  • Magnesium gycinate 400mg/day
  • 1/2 strength primer 1/day
  • tyrosine 500mg/day
CLO in medicine cup
Probiotic, magnesium, primer in apple juice
Calcium as a soft chewable capsule
Tyrosine mixed into margarine on a rice cake.  I do want to find a better ‘treat’ to mix this into such as coconut ice.
Once again, this is a medical protocol prescribed for our sons specific medical condition.  This is not generic advice and should not be taken as medical advice.  Please consult your doctor or go to the Interesting Links page to find a Bio Medicine practitioner.

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Filed under Bio Med, Post Appointment Review

Meals – a week in review

Just a quick post to list our meals for the week.

  • Buckwheat and Sorghum Pancakes ( a lazy night)
  • Souvlaki
  • Apricot Chicken with rice and green beans
  • Lamb and pork steaks with Rice Salad
  • Tempura fish with homemake chips and salad
  • Shepherd pie with peas
  • Turkey Meatballs with Pasta (rice pasta for our son and rice and corn for the rest of us – cooked separately)

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Filed under Corn Free (CF), Dairy Free (DF), Gluten Free (GF), Meal Plans, Soy Free (SF)